Recovery took longer than I expected this time around and then once I was feeling better I was overwhelmed by how much needed to be done. Honestly, its always a bit daunting stepping back into life after having ducked out for many days. I liken it to stepping onto a moving walkway, like they have at the airport, after having crawled next to it for a stretch.
I'm so very grateful for the luxury of my situation. I have an understanding husband, kids who can largely take care of themselves and I am not the primary income-earner in our family. This means, even though its frustrating to me, I'm able to sit in a chair an extra day or three without it adversely affecting the household. That is huge!
We had a call with the oncologist this week.
What she said: after this Monday treatment, you can take a week off and not have another infusion until the new year. Additionally, she offered to back off the potency about 10%, which should not effect the efficacy but should lessen the side effects.
What I heard her say: after this Monday treatment, you can have Christmas off. In fact, we'll just end all these silly treatments and you can just go live your life, which will be long and prosperous and without suffering.
For real. This is why I do my best to have Shaun and Amy with me for discussions with doctors. Inevitably, I latch on to a piece of information I want to hear, then am unable to receive or process the rest of the conversation. Part personality, part coping, I think.
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